Holidays:
The school holidays start at the end of this week, finally! I haven't had a break since February or something; I spent all of the term 1 holidays studying, catching up on the 7 weeks of work I had missed. I'm seeing a friend and going to a movie on the 3rd of July, and there's the Class of 2009 reunion towards the end of the month, so I need to go shopping on the holidays and find a blazer, because, at 19, I don't think I'll fit in wearing a hoodie! But I'll still wear my jeans, lol. I really need a rest, though. I'm completely exhausted.
I think I should move my specialist appointment to a closer date, because the 19th of July is too far away. We need to work out a compromise on my sleep, and therefore my pain. I find it hard to believe that in the 21st century doctors can only treat nausea with Ondansetron, provided you use it very sparingly. I need my other symptoms treated, and not with Melatonin! It doesn't work, no matter how high or low the dose is!!
Maths tutoring:
My tutor rang about half an hour before tutoring was due to start, to say that she couldn't make it, as something really urgent had suddenly come up. (She works as a dentist now, and has been tutoring me since I was 13. I'm lucky she makes the time each week to tutor me!) I didn't think it would be a problem until after I spent 3.5hrs revising antidifferentiation, and realised that I was having a lot more trouble with this Unit than I had originally thought. I tried to start the work for Week 2, but it's just too hard for me to understand what is written in my coursebook; I need someone to go through the examples, and explain how it works and why I need to do each step.
I realised about an hour ago that I'll be so busy this week that I won't be able to start my homework until Thursday evening (my tutor is coming over at about 6.30pm) and it's due Friday. That means tutoring will finish at around 9pm, and then I need to study for at least 2.5hrs to do my homework. So I won't be finished until about 11.30pm or midnight.
Unfortunately, because I study via distance education, it takes at least 24 hours for my homework to arrive. I was sent an email last month saying that if you don't have all your homework in before the holidays, the work may not be marked. But I don't think my homework arriving on Monday as opposed to the previous Friday will make a lot of difference, particularly if I let my teacher know. I can't do it on Monday, Tuesday or Wednesday, either; I have appointments on Monday (two of them) and a personal training session on Wednesday, so I'll obviously have to rest and try to sleep on Tuesday. I also have an appointment on Friday, so I can't do the rest of my homework then, unless I cut out a lot of sleep, take Ondansetron and a lot of painkillers. Not a pleasant option. And I'm feeling really exhausted and sick every day. Today was the one day I felt able to study!
Stress and anxiety...
Does anyone have any tips on how to cope?
Year 12 is the most stressful and anxiety-inducing experience I've ever encountered, particularly given my M.E.! There are just so many things to worry about, and my specialist is telling me one visit to drop out, and the next to get a part time job soon! I honestly think doctors talk nonsense when they're at a loss for what to say or do.
Also, if anyone else has sleep problems similar to mine, have you found any medications that helped or worked?
I guess that's it for now, I'll probably have more to write later in the week. Thanks so much for the comments, it's great to know that other people are reading this! Any and all positive comments/feedback are most welcome. =D
Showing posts with label distance education. Show all posts
Showing posts with label distance education. Show all posts
Sunday, June 20, 2010
Saturday, May 1, 2010
Distance Education
Good news!!!I got my work for Week 9 completed last Saturday and my work for Week 10 was finished on Thursday, so Mum was able to mail them both on Friday. I felt so much better once I'd finished my work; like I wasn't weighed under anymore. There's just so much work that it overwhelms me & makes me sicker. But I got my work back (Weeks 1-4) and I got everything right, except for one or two questions. My teacher thinks I have a "really good understanding" of all the concepts, even graphs!! So if I do that well on my SAC, I should end up with a B or an A as my mark so far. Which is brilliant, I've never been a good maths student! She's still marking the SACs for my 'class', but I should receive it soon. I use registered mail for all my distance education work & paperwork/forms; it's reliable, can't get lost, and you get a delivery receipt. I've got a SAC in 3-4 weeks, I think it's on differentiation/calculus, so I should be okay with that one. I'm just not great at using my calculator. It's a TI-89 Titanium. (If anyone has/had one and can give me some tips on how to use it, I'll be eternally grateful!!)
Sleep...
I haven't been sleeping much at all. Two hours' broken sleep some nights, 5 hours' broken sleep other nights. The longest I can stay asleep for is about an hour. So I wake hourly on a good night, but every 10mins on a bad night. Today I went to bed at about 1.20am, fell asleep around 2.15am; woke at 6.15am and 8.40am. (Haven't slept since.) That was a pretty good sleep. I just wish I could've slept 'til midday so I could have, like, 8-9 hours of sleep before maths tutoring. (Which is at 2pm.) If I could sleep for 7 hours a night, without waking, my pain would be greatly reduced, I'd be able to function and I wouldn't feel like an early onset dementia patient!! (Seriously; I forget sentences, the names of objects, where I'm going, what a key does AND what it's called... I can get to the front door, have my key in my hand and go: "I don't know what it's called or what it does. How do I get in?")
Another "specialist"
Mum did some more research & found a doctor who is about 1/2 an hour from us, and he actually TREATS pain!! With real painkillers!! Goodbye, Panadeine Forte, hello sleep and pain relief!! He also uses LDN, which is highly recommended by some overseas Twitter friends. One problem: no appointments until SEPTEMBER. I'm on the cancellation list, but as soon as I can manage a phone call, I'll ring up and explain my situation; Year 12, immense pain, sleep deprivation, exams in October/November, my need to graduate next year. Hopefully I can get an earlier appointment. Fingers crossed!! But don't worry, I'm not getting my hopes up; aside from pain relief. I'm not going to be devastated and have a relapse caused by another doctor making promises no one can keep.
Organisation...
I'm usually an organised person when it comes to schoolwork, study and homework, but it's got so much harder now I'm this ill. Plus I get panicked and stressed very easily, so once I mail something, I worry that it hasn't got there/I wrote the wrong name or address/it's been lost. So I'm an anxious person to say the least. This year, I've let things slip. The work being 7 weeks late meant I slid downhill and was constantly overwhelmed. So the necessary forms aren't being filled in on time (also because they're sent 5 weeks late) but it's not helping. Thankfully, there's email, which I can check in bed on my iPhone!! So I have some Special Provisions info for my exams in my email inbox, plus the booklet is in the mail and should arrive in time for my Wednesday appointment with my usual "specialist." I also need to change one of the exams. It starts at 9.45am or something, and I can't function until after midday. So I need aforementioned "specialist" to put in a request for a change of time. She's great with paperwork and the "typical" ME/CFS cases, but isn't good for severe cases. Also she quote: "won't think outside the box in regard to treatments." End quote. Even L-Carnitine is to risky for her. So it's Melatonin (never worked) or anti-depressants. (Never worked, made me really sick.) So, yeah. I'd better be more organised for orientation this summer and school next year!! Hope my uniform still fits; I've been eating 3 meals a day some days!!!
Formspring.me:
I got some rather abusive/offensive questions on formspring.me when I said "ask me something" on Facebook & Twitter. I have an idea of who it was, and one of the questions I didn't answer because it would give away information like my location. (Stupid idea on the internet.) So I've disabled the "anonymous" option on questions. But feel free to ask me any questions that are civil and not offensive. =)
http://www.formspring.me/thecabbagestalk
I'll blog again soon:
Thanks for your comments, they mean the world to me. It's nice to not be called a liar", "whinger" or "faker" just because I try to raise awareness about ME/CFS and actually talk/blog/tweet about it!!
Hope you're all well, take care.
Alex. x
Sleep...
I haven't been sleeping much at all. Two hours' broken sleep some nights, 5 hours' broken sleep other nights. The longest I can stay asleep for is about an hour. So I wake hourly on a good night, but every 10mins on a bad night. Today I went to bed at about 1.20am, fell asleep around 2.15am; woke at 6.15am and 8.40am. (Haven't slept since.) That was a pretty good sleep. I just wish I could've slept 'til midday so I could have, like, 8-9 hours of sleep before maths tutoring. (Which is at 2pm.) If I could sleep for 7 hours a night, without waking, my pain would be greatly reduced, I'd be able to function and I wouldn't feel like an early onset dementia patient!! (Seriously; I forget sentences, the names of objects, where I'm going, what a key does AND what it's called... I can get to the front door, have my key in my hand and go: "I don't know what it's called or what it does. How do I get in?")
Another "specialist"
Mum did some more research & found a doctor who is about 1/2 an hour from us, and he actually TREATS pain!! With real painkillers!! Goodbye, Panadeine Forte, hello sleep and pain relief!! He also uses LDN, which is highly recommended by some overseas Twitter friends. One problem: no appointments until SEPTEMBER. I'm on the cancellation list, but as soon as I can manage a phone call, I'll ring up and explain my situation; Year 12, immense pain, sleep deprivation, exams in October/November, my need to graduate next year. Hopefully I can get an earlier appointment. Fingers crossed!! But don't worry, I'm not getting my hopes up; aside from pain relief. I'm not going to be devastated and have a relapse caused by another doctor making promises no one can keep.
Organisation...
I'm usually an organised person when it comes to schoolwork, study and homework, but it's got so much harder now I'm this ill. Plus I get panicked and stressed very easily, so once I mail something, I worry that it hasn't got there/I wrote the wrong name or address/it's been lost. So I'm an anxious person to say the least. This year, I've let things slip. The work being 7 weeks late meant I slid downhill and was constantly overwhelmed. So the necessary forms aren't being filled in on time (also because they're sent 5 weeks late) but it's not helping. Thankfully, there's email, which I can check in bed on my iPhone!! So I have some Special Provisions info for my exams in my email inbox, plus the booklet is in the mail and should arrive in time for my Wednesday appointment with my usual "specialist." I also need to change one of the exams. It starts at 9.45am or something, and I can't function until after midday. So I need aforementioned "specialist" to put in a request for a change of time. She's great with paperwork and the "typical" ME/CFS cases, but isn't good for severe cases. Also she quote: "won't think outside the box in regard to treatments." End quote. Even L-Carnitine is to risky for her. So it's Melatonin (never worked) or anti-depressants. (Never worked, made me really sick.) So, yeah. I'd better be more organised for orientation this summer and school next year!! Hope my uniform still fits; I've been eating 3 meals a day some days!!!
Formspring.me:
I got some rather abusive/offensive questions on formspring.me when I said "ask me something" on Facebook & Twitter. I have an idea of who it was, and one of the questions I didn't answer because it would give away information like my location. (Stupid idea on the internet.) So I've disabled the "anonymous" option on questions. But feel free to ask me any questions that are civil and not offensive. =)
http://www.formspring.me/thecabbagestalk
I'll blog again soon:
Thanks for your comments, they mean the world to me. It's nice to not be called a liar", "whinger" or "faker" just because I try to raise awareness about ME/CFS and actually talk/blog/tweet about it!!
Hope you're all well, take care.
Alex. x
Wednesday, April 21, 2010
Doctor Who, & a little good news!
The 11th Doctor!!
I watched the first episode with Matt Smith, & it took a while, but I've got to say that I do like him... A lot. He's quirky & funny, but is lacking the dress sense of the 10th Doctor. (Who is still my all-time fave!) I'm going to keep watching. I also like Amy, his soon to be (I presume) companion. She reminds me of Donna! I really liked the episode, though it was slow in a few parts. I absolutely hated the complete overhaul of the theme music, logo, TARDIS interior & sonic screwdriver. I loved the continuity of "wibbly-wobbly... timey-wimey..." It was brilliant, & I love anything that links back to my fave Doctor. I'm counting down the hours (practically) until the next episode: Sunday night!! If any of my Twitter followers are reading this; please no spoilers!! =P
Now, the good news:
My mum mailed my SAC & SEND tasks from Weeks 1-4 yesterday, so if the address/name/location are correct, my teacher should receive it today. (Wednesday.) That means I'm no longer behind in my work!!
Complete exhaustion...
After the marathon study session & maths tutoring & finishing my SAC, I was exhausted the next day, Sunday. I expected that. But it's now Wednesday & I can't see any improvement. I'm doing 3x the work I did when I attended a real school, I have no social life/contact & receiving any form of communication is really dodgy. You never know if it'll be a month late, on time, or 7 weeks late. So the stress from that isn't helping things at all. I still haven't been able to get out of bed most days until 4pm. My alarm goes off at 2pm, but I'm too weak & dead tired to move. So I just lie there.
Week 9 SEND tasks:
I obviously can't work on the Week 9 SEND tasks tomorrow, as I have a personal training session. (Yes, I'm still persevering with that.) So I'll have to do it on Thursday, if I have any ability to sit & study. I'll have to take meds to do so, but that's a sacrifice I'm willing to make! (It's really hard to get these particular meds.) It's a short bit on the "tangent function" & something else where you mark key points on 2 graphs, then add them to come up with an in-between graph. I'm just so wiped out, it's terrifying me. Also, it's about 5am, I haven't slept yet, & need my sleep really badly.
Good morning/goodnight...
It's getting early in the morning, so I'll attempt sleep for the 1000th time! I hope my readers are well, & if anyone has any feedback, tips, or just would like to chat about ME/CFS, or Doctor Who, or something, then comment!! I read all of them! =D
I watched the first episode with Matt Smith, & it took a while, but I've got to say that I do like him... A lot. He's quirky & funny, but is lacking the dress sense of the 10th Doctor. (Who is still my all-time fave!) I'm going to keep watching. I also like Amy, his soon to be (I presume) companion. She reminds me of Donna! I really liked the episode, though it was slow in a few parts. I absolutely hated the complete overhaul of the theme music, logo, TARDIS interior & sonic screwdriver. I loved the continuity of "wibbly-wobbly... timey-wimey..." It was brilliant, & I love anything that links back to my fave Doctor. I'm counting down the hours (practically) until the next episode: Sunday night!! If any of my Twitter followers are reading this; please no spoilers!! =P
Now, the good news:
My mum mailed my SAC & SEND tasks from Weeks 1-4 yesterday, so if the address/name/location are correct, my teacher should receive it today. (Wednesday.) That means I'm no longer behind in my work!!
Complete exhaustion...
After the marathon study session & maths tutoring & finishing my SAC, I was exhausted the next day, Sunday. I expected that. But it's now Wednesday & I can't see any improvement. I'm doing 3x the work I did when I attended a real school, I have no social life/contact & receiving any form of communication is really dodgy. You never know if it'll be a month late, on time, or 7 weeks late. So the stress from that isn't helping things at all. I still haven't been able to get out of bed most days until 4pm. My alarm goes off at 2pm, but I'm too weak & dead tired to move. So I just lie there.
Week 9 SEND tasks:
I obviously can't work on the Week 9 SEND tasks tomorrow, as I have a personal training session. (Yes, I'm still persevering with that.) So I'll have to do it on Thursday, if I have any ability to sit & study. I'll have to take meds to do so, but that's a sacrifice I'm willing to make! (It's really hard to get these particular meds.) It's a short bit on the "tangent function" & something else where you mark key points on 2 graphs, then add them to come up with an in-between graph. I'm just so wiped out, it's terrifying me. Also, it's about 5am, I haven't slept yet, & need my sleep really badly.
Good morning/goodnight...
It's getting early in the morning, so I'll attempt sleep for the 1000th time! I hope my readers are well, & if anyone has any feedback, tips, or just would like to chat about ME/CFS, or Doctor Who, or something, then comment!! I read all of them! =D
Sunday, April 18, 2010
Lots of stress, too much study...
First SAC of the year...
My SAC didn't arrive in the mail like it was supposed to. So my teacher tried emailing it. Her attachment kept crashing the iMac. So she sent it in the message body of the email, & left work. At 4.15pm. At 5.02pm the message arrived, but the SAC was riddled with errors - a Yen symbol replaced the infinity symbol throughout the SAC, etc. But when I emailed my teacher, she said that it didn't appear that way on her computer, but that the Yen symbol did mean infinity. So I had several panic attacks & became hysterical. (The idea that I was going to fail & I'd missed basic concepts of maths was overwhelming.)
Then my mum left voicemail messages for the student wellbeing person, the year level co-ordinator, the Principal & my teacher outlining the situation they'd placed me in. Including the fact that THEY sent my work 7 weeks late & expected me to magically do 42 - 56hrs of work over the holidays to catch up. Despite the fact I'd explained my situation & had applied on medical grounds.
So it arrived in the mail the next day, (Thursday afternoon) my teacher apologised, as did the year level co-ordinator & the Principal. The SAC counts for the work from Weeks 5, 6 & 7, & I have an extension until this Thursday! I started it on Friday, & finished it today, after tutoring. I texted my tutor last week with a list of the concepts I was finding really hard (graphs; particularly reflections & dilations, as well as circular functions) so we revised that. Luckily it helped some with the SAC. I think I'll get an okay mark. I don't wanna jinx it, lol.
Maths tutoring...
So I had Maths tutoring yesterday, & it went for 2.5 - 3hrs! After that I worked on my SAC. Then I ate... I ended up starving by the end of it! But with tutoring, we covered all of Week 9 (this week beginning Monday) & it was relatively short. Basically just the "tangent function" & some odd thing where you add intercepts to come up with an in-between graph. F**k knows why you'd want to, but, yeah. I learned that. Also, I hate circular functions, I hate graphs, so the "tangent function" is irritating. It's a graph that's circular functions. I guess I just hate graphs & circular functions because I'm not that good at them!
So after resting today, then sending my work off on Monday, I'll attempt the SEND tasks for Week 9 on Tuesday, maybe. If I don't get sick, & everything goes according to plan, I should be on track until the next SAC. It's on differentiation. (Calculus...) I like it more than graphs, that's for sure!
Sleep...
I've been trying to go to bed between midnight & 1am for the past week or something, but, as you can see, tonight, I ceebz. I'm wide awake, it's almost 2.30am, & there were some really good shows taped on the Foxtel iQ. Plus I wanted to stay up until I wasn't dizzy/feeling sick/had a headache from overdoing it yesterday with all that maths! I've tried reading to make me sleepy; no matter what I read, whether it's tax law, news sites, actual newspapers, novels, Shakespeare, poetry, blogs, medical information I've printed off, medical sites, blogs; anything, it doesn't help me sleep. Sometimes just watching tv or DVDs on my laptop until I'm sleepy works. That's why it's great having all those Skins & The OC DVDs! But I am hoping to get a serious sleep pattern going soon, in anticipation of exams & (hopefully) school & graduation next year. I still want a decent ENTER, but right now, I'll settle for getting back to school!
Goodnight!
Well, it's nearly 2.30am, so I'm going to try & sleep now. I love it when anyone posts a comment, or gives feedback. It's nice to know people out there are actually reading this, & some of you understand. I've since downloaded a lot more apps for my iPhone, so there are heaps of things to keep me occupied when I can't sleep, am bored during the day, or want to multi task... Watch tv & use an iPhone. =p Also, is it just me, or are The Killers mentioned in the song "Boys Boys Boys" by Lady GaGa? I could swear they are. Then again, I have ME/CFS induced brain fog!! Hope anyone who reads this is well... Or as well as possible. =)
My SAC didn't arrive in the mail like it was supposed to. So my teacher tried emailing it. Her attachment kept crashing the iMac. So she sent it in the message body of the email, & left work. At 4.15pm. At 5.02pm the message arrived, but the SAC was riddled with errors - a Yen symbol replaced the infinity symbol throughout the SAC, etc. But when I emailed my teacher, she said that it didn't appear that way on her computer, but that the Yen symbol did mean infinity. So I had several panic attacks & became hysterical. (The idea that I was going to fail & I'd missed basic concepts of maths was overwhelming.)
Then my mum left voicemail messages for the student wellbeing person, the year level co-ordinator, the Principal & my teacher outlining the situation they'd placed me in. Including the fact that THEY sent my work 7 weeks late & expected me to magically do 42 - 56hrs of work over the holidays to catch up. Despite the fact I'd explained my situation & had applied on medical grounds.
So it arrived in the mail the next day, (Thursday afternoon) my teacher apologised, as did the year level co-ordinator & the Principal. The SAC counts for the work from Weeks 5, 6 & 7, & I have an extension until this Thursday! I started it on Friday, & finished it today, after tutoring. I texted my tutor last week with a list of the concepts I was finding really hard (graphs; particularly reflections & dilations, as well as circular functions) so we revised that. Luckily it helped some with the SAC. I think I'll get an okay mark. I don't wanna jinx it, lol.
Maths tutoring...
So I had Maths tutoring yesterday, & it went for 2.5 - 3hrs! After that I worked on my SAC. Then I ate... I ended up starving by the end of it! But with tutoring, we covered all of Week 9 (this week beginning Monday) & it was relatively short. Basically just the "tangent function" & some odd thing where you add intercepts to come up with an in-between graph. F**k knows why you'd want to, but, yeah. I learned that. Also, I hate circular functions, I hate graphs, so the "tangent function" is irritating. It's a graph that's circular functions. I guess I just hate graphs & circular functions because I'm not that good at them!
So after resting today, then sending my work off on Monday, I'll attempt the SEND tasks for Week 9 on Tuesday, maybe. If I don't get sick, & everything goes according to plan, I should be on track until the next SAC. It's on differentiation. (Calculus...) I like it more than graphs, that's for sure!
Sleep...
I've been trying to go to bed between midnight & 1am for the past week or something, but, as you can see, tonight, I ceebz. I'm wide awake, it's almost 2.30am, & there were some really good shows taped on the Foxtel iQ. Plus I wanted to stay up until I wasn't dizzy/feeling sick/had a headache from overdoing it yesterday with all that maths! I've tried reading to make me sleepy; no matter what I read, whether it's tax law, news sites, actual newspapers, novels, Shakespeare, poetry, blogs, medical information I've printed off, medical sites, blogs; anything, it doesn't help me sleep. Sometimes just watching tv or DVDs on my laptop until I'm sleepy works. That's why it's great having all those Skins & The OC DVDs! But I am hoping to get a serious sleep pattern going soon, in anticipation of exams & (hopefully) school & graduation next year. I still want a decent ENTER, but right now, I'll settle for getting back to school!
Goodnight!
Well, it's nearly 2.30am, so I'm going to try & sleep now. I love it when anyone posts a comment, or gives feedback. It's nice to know people out there are actually reading this, & some of you understand. I've since downloaded a lot more apps for my iPhone, so there are heaps of things to keep me occupied when I can't sleep, am bored during the day, or want to multi task... Watch tv & use an iPhone. =p Also, is it just me, or are The Killers mentioned in the song "Boys Boys Boys" by Lady GaGa? I could swear they are. Then again, I have ME/CFS induced brain fog!! Hope anyone who reads this is well... Or as well as possible. =)
Saturday, April 10, 2010
iPhone!!!!
iPhone!!!!
I got an iPhone today!! I'm so excited!!! It's a black, 32GB iPhone. It's awesome, but I only spent about 10mins using it; then I put a protective screen cover on it, & you're supposed to wait 12hrs before you turn it on. I put it on at 2.50pm. It's now 4.30pm, so I may just wait 6hrs. That way I can load some apps on to it tonight! One of my friends recommended Echofon for a Twitter app, & suggested I get a Facebook app. Any other suggestions for games/apps I should get? My brother loves something called "Doodle jump" ... Or something. Don't quote me on that. There's also a horrific app where you can kill a cartoon bunny. As a 13-year-old boy, he loves that app. lol.
It took a lot of persuasion, from me & my mum, but my father finally caved in; we ended his contract a couple of months early, paid an exit fee, then used my sim card for the iPhone, so I've still got the same number, just my father has the more expensive plan. =o (His is a $39 cap + $14 for the iPhone per month, mine is a $29 cap + $8 of 500MB internet/data use per month.) My mum argued that seeing as I'm up all hours, & am at home, don't cost much (you know, I don't go out, so no expensive shoes, dresses, concert tickets, whatever) it'd be a great thing to occupy me. Plus I deserve it. =p And a lot of my friends have them. When it was first released, my contract had expired, but my father said it was too expensive to get. (It was, it was probably a $69 cap per month + $$ for the iPhone!) So now it's cheaper, I have less to think about, like if I forget my iPod, I have my iPhone, & I don't have to constantly restart my phone to get access to internet at 3am. It can access the home wi-fi. =D I can't wait to find out all the features & apps I can get!!
Maths...
I had tutoring at 9.30am today, last night I went on a Starlight escape to a comedian's show, & I didn't get to sleep until about 1.40am, woke at 6am, & didn't sleep again. So I went on Twitter, complained. (As always! =p) Then after a few hours I got up, took my meds, had a shower, had breakfast & got ready. I went pretty well; we've nearly finished week 7, so I'm up to date in that sense, but as for the SEND tasks, I'm up to... Week 5, which I've just started. My SAC should arrive on Monday, & I have all week to do it, (well, I only have 50mins for it, but I can do it any day, or over a few days) & tutoring is on the weekend, when we'll start on week 8. I just hope I can catch up to week 7 before next weekend. I did ring my teacher. (Well, my mum rang my teacher, who called me.) She said I can do half the SEND tasks if I want, use my calculator, & skip the analysis questions, unless I think I can do them quickly. I just need to send in enough work from each week to show that I grasp the concepts. I really do wish my work hadn't been so late. It's not like I need any more stress!
Doctor Who
The Easter episode of Doctor Who is airing on iView (on the ABC's site) on the 16/04, & it's on tv on the 18/04!! I'm really interested. I want to see what sort of a Doctor Matt Smith will be, & I'm willing to give him a decent chance. But David Tennant will always be my Doctor! I've heard he's quite quirky, which sounds good. A Doctor like Christopher Eccleston's takes a lot of adjustment. But he could be funny, at times, which I liked.
I downloaded a whole lot of awesome desktops/backgrounds/wallpapers the other night; all of the 10th Doctor. I picked the ones that look amazing, or mean something to me, because of the image or the quote. They've got great imagery with quotes & all sorts of things! It's amazing how much great stuff is on Google images. Other wallpapers are just awesome because it's the 10th Doctor. =p
Pain...
I'm in more pain, my back is pretty bad today because I haven't slept enough, haven't spent any time lying down since 8.30am, & have done a lot today. I went to one store nearby to get the protective screen cover & case for my iPhone, then went to the big shopping centre to get the iPhone. The main store had sold out (within 2hrs of me phoning) but the kiosk on the next level had some, so that was good. It was a lot of walking, though. Improving my posture hasn't improved my pain yet; it's still getting worse, & it's migrating. It used to always be severe lower back pain that radiated up my spine, now it can be in the middle of my spine or even in my neck. Or just my whole back & spine. It's really hard to cope with. Also, I had blurred vision the other night, which scared me, because it hasn't happened since I was on the Gabapentin. It went away eventually, & I still managed to do some maths hw, which was good. =)
Hello?
I don't know if anyone reads this anymore, because I'm not getting any comments... Seriously, I don't mind whether it's a recommendation for apps, how to layout my blog, or your experiences with ME/CFS; anything positive/constructive, really. I'm happy to hear it! I hope I am reaching someone, rather than just blogging for no reason.
I got an iPhone today!! I'm so excited!!! It's a black, 32GB iPhone. It's awesome, but I only spent about 10mins using it; then I put a protective screen cover on it, & you're supposed to wait 12hrs before you turn it on. I put it on at 2.50pm. It's now 4.30pm, so I may just wait 6hrs. That way I can load some apps on to it tonight! One of my friends recommended Echofon for a Twitter app, & suggested I get a Facebook app. Any other suggestions for games/apps I should get? My brother loves something called "Doodle jump" ... Or something. Don't quote me on that. There's also a horrific app where you can kill a cartoon bunny. As a 13-year-old boy, he loves that app. lol.
It took a lot of persuasion, from me & my mum, but my father finally caved in; we ended his contract a couple of months early, paid an exit fee, then used my sim card for the iPhone, so I've still got the same number, just my father has the more expensive plan. =o (His is a $39 cap + $14 for the iPhone per month, mine is a $29 cap + $8 of 500MB internet/data use per month.) My mum argued that seeing as I'm up all hours, & am at home, don't cost much (you know, I don't go out, so no expensive shoes, dresses, concert tickets, whatever) it'd be a great thing to occupy me. Plus I deserve it. =p And a lot of my friends have them. When it was first released, my contract had expired, but my father said it was too expensive to get. (It was, it was probably a $69 cap per month + $$ for the iPhone!) So now it's cheaper, I have less to think about, like if I forget my iPod, I have my iPhone, & I don't have to constantly restart my phone to get access to internet at 3am. It can access the home wi-fi. =D I can't wait to find out all the features & apps I can get!!
Maths...
I had tutoring at 9.30am today, last night I went on a Starlight escape to a comedian's show, & I didn't get to sleep until about 1.40am, woke at 6am, & didn't sleep again. So I went on Twitter, complained. (As always! =p) Then after a few hours I got up, took my meds, had a shower, had breakfast & got ready. I went pretty well; we've nearly finished week 7, so I'm up to date in that sense, but as for the SEND tasks, I'm up to... Week 5, which I've just started. My SAC should arrive on Monday, & I have all week to do it, (well, I only have 50mins for it, but I can do it any day, or over a few days) & tutoring is on the weekend, when we'll start on week 8. I just hope I can catch up to week 7 before next weekend. I did ring my teacher. (Well, my mum rang my teacher, who called me.) She said I can do half the SEND tasks if I want, use my calculator, & skip the analysis questions, unless I think I can do them quickly. I just need to send in enough work from each week to show that I grasp the concepts. I really do wish my work hadn't been so late. It's not like I need any more stress!
Doctor Who
The Easter episode of Doctor Who is airing on iView (on the ABC's site) on the 16/04, & it's on tv on the 18/04!! I'm really interested. I want to see what sort of a Doctor Matt Smith will be, & I'm willing to give him a decent chance. But David Tennant will always be my Doctor! I've heard he's quite quirky, which sounds good. A Doctor like Christopher Eccleston's takes a lot of adjustment. But he could be funny, at times, which I liked.
I downloaded a whole lot of awesome desktops/backgrounds/wallpapers the other night; all of the 10th Doctor. I picked the ones that look amazing, or mean something to me, because of the image or the quote. They've got great imagery with quotes & all sorts of things! It's amazing how much great stuff is on Google images. Other wallpapers are just awesome because it's the 10th Doctor. =p
Pain...
I'm in more pain, my back is pretty bad today because I haven't slept enough, haven't spent any time lying down since 8.30am, & have done a lot today. I went to one store nearby to get the protective screen cover & case for my iPhone, then went to the big shopping centre to get the iPhone. The main store had sold out (within 2hrs of me phoning) but the kiosk on the next level had some, so that was good. It was a lot of walking, though. Improving my posture hasn't improved my pain yet; it's still getting worse, & it's migrating. It used to always be severe lower back pain that radiated up my spine, now it can be in the middle of my spine or even in my neck. Or just my whole back & spine. It's really hard to cope with. Also, I had blurred vision the other night, which scared me, because it hasn't happened since I was on the Gabapentin. It went away eventually, & I still managed to do some maths hw, which was good. =)
Hello?
I don't know if anyone reads this anymore, because I'm not getting any comments... Seriously, I don't mind whether it's a recommendation for apps, how to layout my blog, or your experiences with ME/CFS; anything positive/constructive, really. I'm happy to hear it! I hope I am reaching someone, rather than just blogging for no reason.
Monday, April 5, 2010
Busy & stressed!
My past week:
On the 27/03 & 28/03 I had two hours of Maths tutoring each day to catch up; I'd missed the previous week's session because I went to see a movie with a friend, & it was my birthday that weekend. One of the worst ever. So it took me a while to recover from that. (In fact, I'm not sure I have recovered yet.)
On the 30/03 I had a dentist's appointment, which was exhausting & I also got my iPod fixed & looked at Sportsgirl.
Then on the 31/03 I had my first personal training session at the gym, which went well, but I was incredibly exhausted as my younger brother had a friend & the friend's younger brother at our place all day.
The next day (01/04) I had a hair cut/colour & it took a few hours, but it was nice to get out of the house & do something that didn't involve ME/CFS for once. Then I noticed a sale at Cotton On & the Bonds outlet, so I bought a loose top that matches my pajamas for $5 from Cotton On, a jacket & long sleeve t-shirt from the Bonds outlet. Then I was exhausted.
On Sunday (04/03) I went to the footy after an awful weekend, thanks to my father. I had a good time with my half-brother from Germany, his girlfriend & my family. (Excluding my father.) After the footy match we went to the Hilton to have a coffee & some snacks, then caught a taxi home.
My further exhaustion & feelings of being overwhelmed:
I got back at about 9.50pm last night, & had to shower & wash, dry, straighten my hair & do my Methods hw which I'd been too busy or wiped out to do all week. I've finally got all of week 1 ready to send in, & all of week 2 except for 1 question. Just 5 more weeks of work to be completed by the 11/04 & I'm set. Then I have a SAC the first week of term, but I'm allowed to take rest breaks, etc. plus my mum is supervising me. So that should quell some of my nerves/panic attacks/anxiety about exams/tests/SACs. I hope.
Sleep: (or lack thereof)
It's 4am & I haven't slept yet. My body is keeping me awake, despite the fact I've taken my meds, because it knows I have tutoring at 1pm, & my body thinks I'll oversleep. It's stupid. I need sleep for tutoring, so my body ensures I don't sleep before tutoring. It's torture & a waste of my valuable meds! I'm going to go insane from lack of sleep. I either get to sleep by 4am & wake every 10mins or get to sleep by 8am & wake every 30mins. Both are exhausting, both cannot be classified as sleep, & no one can help me. I'm on my own here. I've tried everything & nothing helps. Exercise seems to make it worse, stress obviously does & I'm stressed out of my mind.
So busy & so desperate to sleep:
I need to get to sleep!!! My half-brother from Germany & his girlfriend are coming over after tutoring for an early dinner & also so they can tell us about their trip through central Australia. I must study, I must pass, I must get a good mark, & I must return to school next year. The isolation is awful & so is being stuck at home. I just want the energy & ability to escape for a few days. I'm not coping anymore.
Expect another post soon, unless I get too sick to use my laptop again!
On the 27/03 & 28/03 I had two hours of Maths tutoring each day to catch up; I'd missed the previous week's session because I went to see a movie with a friend, & it was my birthday that weekend. One of the worst ever. So it took me a while to recover from that. (In fact, I'm not sure I have recovered yet.)
On the 30/03 I had a dentist's appointment, which was exhausting & I also got my iPod fixed & looked at Sportsgirl.
Then on the 31/03 I had my first personal training session at the gym, which went well, but I was incredibly exhausted as my younger brother had a friend & the friend's younger brother at our place all day.
The next day (01/04) I had a hair cut/colour & it took a few hours, but it was nice to get out of the house & do something that didn't involve ME/CFS for once. Then I noticed a sale at Cotton On & the Bonds outlet, so I bought a loose top that matches my pajamas for $5 from Cotton On, a jacket & long sleeve t-shirt from the Bonds outlet. Then I was exhausted.
On Sunday (04/03) I went to the footy after an awful weekend, thanks to my father. I had a good time with my half-brother from Germany, his girlfriend & my family. (Excluding my father.) After the footy match we went to the Hilton to have a coffee & some snacks, then caught a taxi home.
My further exhaustion & feelings of being overwhelmed:
I got back at about 9.50pm last night, & had to shower & wash, dry, straighten my hair & do my Methods hw which I'd been too busy or wiped out to do all week. I've finally got all of week 1 ready to send in, & all of week 2 except for 1 question. Just 5 more weeks of work to be completed by the 11/04 & I'm set. Then I have a SAC the first week of term, but I'm allowed to take rest breaks, etc. plus my mum is supervising me. So that should quell some of my nerves/panic attacks/anxiety about exams/tests/SACs. I hope.
Sleep: (or lack thereof)
It's 4am & I haven't slept yet. My body is keeping me awake, despite the fact I've taken my meds, because it knows I have tutoring at 1pm, & my body thinks I'll oversleep. It's stupid. I need sleep for tutoring, so my body ensures I don't sleep before tutoring. It's torture & a waste of my valuable meds! I'm going to go insane from lack of sleep. I either get to sleep by 4am & wake every 10mins or get to sleep by 8am & wake every 30mins. Both are exhausting, both cannot be classified as sleep, & no one can help me. I'm on my own here. I've tried everything & nothing helps. Exercise seems to make it worse, stress obviously does & I'm stressed out of my mind.
So busy & so desperate to sleep:
I need to get to sleep!!! My half-brother from Germany & his girlfriend are coming over after tutoring for an early dinner & also so they can tell us about their trip through central Australia. I must study, I must pass, I must get a good mark, & I must return to school next year. The isolation is awful & so is being stuck at home. I just want the energy & ability to escape for a few days. I'm not coping anymore.
Expect another post soon, unless I get too sick to use my laptop again!
Tuesday, March 30, 2010
iMac
YAY!! ...... Oh, crap..... Oooh, cool.
We finally have a functioning computer!! I've never had a mac before, but we've now got an iMac as the family computer; though I've been on it all night! (That's the "YAY!!") I'm so excited to have new music, but panicked that my iPod won't fully sync, it keeps saying: "The iPod "Alex's iPod" cannot be synced. The required file cannot be found." (That's the "Oh, crap.") It's, like, 1am, & I'm so stressed, annoyed & confused. I bought $110 worth of music, & not all of it may have synced. Oh, btw, it's not my pension being spent on Rammstein, Lady GaGa P!nk, blur & more, it's my Christmas & birthday iTunes vouchers. I have about $10 left, I think. I've been making a list of songs I want ever since our pc decided it wouldn't co-operate with iTunes. (It did this by taking 15mins to open iTunes, then crash when I clicked anything at all.) It was a very manipulative PC. lol!! Oh, the iMac has a WEBCAM!! (That's the "Oooh, cool" bit.) It has this thing called Photo Booth, & you can take pics using aforementioned webcam with various effects & backgrounds. It's awesome, but it also means I'll know how to look halfway decent in actual pics. Practice should make decent. (I'd rather perfect, but I'll never look perfect in a pic!!!) Seriously, I'm not photogenic. I may have to take my iPod to the store & see what the problem is. Must ask mum when she can take me. That is, if the iTunes updates don't fix the problem.
Woo-hoo!!
I read in the paper (well, the newspaper's site on my mobile) that 'The Simpsons' vocab has entered ours. But the "woo-hoo!" part is that I'm finally over my virus, my second in three weeks, & should receive info from my distance education teacher soon about how many 'send' exercises & reviews I must complete. I really hope I can stay in Methods this year, & graduate next year, I really don't want to get worse. I slept rather well last night, luckily. I got 4hrs' sleep without waking! Then the iMac was installed yesterday afternoon, & I spent all evening up until now, pretty much, on the iMac, buying music, making playlists & generally having as much fun as I can possibly have, being me. Also, with the thing about posture supposedly improving my pain levels; it's not. It's so much worse!! But I'm gonna keep going, to either improve, or prove my specialist wrong. I love doing that. *evil grin*
Goodnight...
Well, it's about 1.10am now, so I should check on the progress of the iTunes downloads, & go to bed. Rest my aching bones & all that. =p Also, I'm seriously devastated about Skins. A whole new cast for series 5?! But the site says series 4 is available on DVD; I'm hoping they mean worldwide, but it's unlikely. As ever, I live in hope! Goodnight. =)
We finally have a functioning computer!! I've never had a mac before, but we've now got an iMac as the family computer; though I've been on it all night! (That's the "YAY!!") I'm so excited to have new music, but panicked that my iPod won't fully sync, it keeps saying: "The iPod "Alex's iPod" cannot be synced. The required file cannot be found." (That's the "Oh, crap.") It's, like, 1am, & I'm so stressed, annoyed & confused. I bought $110 worth of music, & not all of it may have synced. Oh, btw, it's not my pension being spent on Rammstein, Lady GaGa P!nk, blur & more, it's my Christmas & birthday iTunes vouchers. I have about $10 left, I think. I've been making a list of songs I want ever since our pc decided it wouldn't co-operate with iTunes. (It did this by taking 15mins to open iTunes, then crash when I clicked anything at all.) It was a very manipulative PC. lol!! Oh, the iMac has a WEBCAM!! (That's the "Oooh, cool" bit.) It has this thing called Photo Booth, & you can take pics using aforementioned webcam with various effects & backgrounds. It's awesome, but it also means I'll know how to look halfway decent in actual pics. Practice should make decent. (I'd rather perfect, but I'll never look perfect in a pic!!!) Seriously, I'm not photogenic. I may have to take my iPod to the store & see what the problem is. Must ask mum when she can take me. That is, if the iTunes updates don't fix the problem.
Woo-hoo!!
I read in the paper (well, the newspaper's site on my mobile) that 'The Simpsons' vocab has entered ours. But the "woo-hoo!" part is that I'm finally over my virus, my second in three weeks, & should receive info from my distance education teacher soon about how many 'send' exercises & reviews I must complete. I really hope I can stay in Methods this year, & graduate next year, I really don't want to get worse. I slept rather well last night, luckily. I got 4hrs' sleep without waking! Then the iMac was installed yesterday afternoon, & I spent all evening up until now, pretty much, on the iMac, buying music, making playlists & generally having as much fun as I can possibly have, being me. Also, with the thing about posture supposedly improving my pain levels; it's not. It's so much worse!! But I'm gonna keep going, to either improve, or prove my specialist wrong. I love doing that. *evil grin*
Goodnight...
Well, it's about 1.10am now, so I should check on the progress of the iTunes downloads, & go to bed. Rest my aching bones & all that. =p Also, I'm seriously devastated about Skins. A whole new cast for series 5?! But the site says series 4 is available on DVD; I'm hoping they mean worldwide, but it's unlikely. As ever, I live in hope! Goodnight. =)
Sunday, March 28, 2010
STRESS!!
Distance education...
My mum rang up the Year 12 co-ordinator for distance education during the week, to ask when I'd be getting a schedule, or some SACs, etc. I then found out I was 7 weeks behind, & the start pack (coursebooks, guides, CD-ROM, etc.) had been sent to us in FEBRUARY, but never arrived. Fail. So I got hyper stressed & had a panic attack. It wasn't until my teacher called me the next day (the 24th) & I explained what I'd covered that I found out I wasn't really 7 weeks behind, I was just missing some key areas: graphs, because they hadn't been covered in the textbook yet. So she said to do the 'send' exercises, & if I had any problems, to look at the coursebooks & explanations, then call/email her if I needed further clarification. The thick coursebook is divided in to weeks (as in weeks of a term) & each week you need to do all the exercises & refer to the thinner coursebook for algebra consolidation exercises & send in the 'send' algebra review exercise(s) & the 'send' work at the end of the chapter. The 'send' at the end of the chapter is 2 - 3 pages long, usually, & there are looooong analysis questions, too. I've nearly finished all of weeks 1 & 2, & have made a start on week 3. I also emailed my teacher to find out how many of the 'send' exercises I need to complete & send in. Otherwise it's waaaaaay too much work for a 2 week holiday break. So stressful!! ... This is a pic of all the work that arrived: http://twitpic.com/1ae3ep
Another virus...
I caught another virus last Monday, probably because when mum went to the gym, her personal trainer was really sick, so I caught it, as I have a really low immune system. (EBV + ME/CFS + secondary infection = low immune system) It was awful. I felt like I usually do (chills, running a fever, aches & pains, headache) but 100x worse & I had a really sore throat that just wouldn't go away, plus I had 'the sniffles'. Badly. I'm still feeling a bit under the weather now, but my tutor noticed the difference in my appearance on Sunday, as opposed to on Saturday. (I'd improved; my voice was more normal.) Imagine if she'd seen me on Wednesday! =o
Flu vaccinations...
I can't get the 'flu shot, because it lays me low, or makes me exhausted/sick for at least 1.5 weeks afterwards. That's a luxury I cannot afford in Year 12. Seeing as I'm practically housebound, I don't need the vaccination, plus with a low immune system, it's recommended in a lot of countries that you shouldn't get the swine flu vaccination unless you work/study, etc. in high-risk areas, like schools, or hospitals. So I may have to get it next year, but I'll ensure I get it on the hols. No reason to fall behind in SACs & work if it can be avoided. I really hope there is a "next year", though. I want to go back to school & graduate so badly that I can't quite explain it in words! I just have to improve & must graduate. Then I can stress about uni. (lol!)
The week ahead...
If all goes well, I'm going to the gym (to see a personal trainer, finally) on Wednesday afternoon, having my hair cut Thursday afternoon, & possibly going to Ikea to get a new wardrobe. Possibly. (I also don't know if we have to get my shelf taken down so the wardrobe will fit. My current wardrobe doesn't fit all my stuff, & isn't great.) Then on Saturday, I have maths tutoring again in the afternoon. (I had it Saturday, and today this week, to make up for last week's missed lesson.) I love Ikea's cafeteria. Particularly the free refills for soft drinks. =D It'd be a nice outing.
My mum rang up the Year 12 co-ordinator for distance education during the week, to ask when I'd be getting a schedule, or some SACs, etc. I then found out I was 7 weeks behind, & the start pack (coursebooks, guides, CD-ROM, etc.) had been sent to us in FEBRUARY, but never arrived. Fail. So I got hyper stressed & had a panic attack. It wasn't until my teacher called me the next day (the 24th) & I explained what I'd covered that I found out I wasn't really 7 weeks behind, I was just missing some key areas: graphs, because they hadn't been covered in the textbook yet. So she said to do the 'send' exercises, & if I had any problems, to look at the coursebooks & explanations, then call/email her if I needed further clarification. The thick coursebook is divided in to weeks (as in weeks of a term) & each week you need to do all the exercises & refer to the thinner coursebook for algebra consolidation exercises & send in the 'send' algebra review exercise(s) & the 'send' work at the end of the chapter. The 'send' at the end of the chapter is 2 - 3 pages long, usually, & there are looooong analysis questions, too. I've nearly finished all of weeks 1 & 2, & have made a start on week 3. I also emailed my teacher to find out how many of the 'send' exercises I need to complete & send in. Otherwise it's waaaaaay too much work for a 2 week holiday break. So stressful!! ... This is a pic of all the work that arrived: http://twitpic.com/1ae3ep
Another virus...
I caught another virus last Monday, probably because when mum went to the gym, her personal trainer was really sick, so I caught it, as I have a really low immune system. (EBV + ME/CFS + secondary infection = low immune system) It was awful. I felt like I usually do (chills, running a fever, aches & pains, headache) but 100x worse & I had a really sore throat that just wouldn't go away, plus I had 'the sniffles'. Badly. I'm still feeling a bit under the weather now, but my tutor noticed the difference in my appearance on Sunday, as opposed to on Saturday. (I'd improved; my voice was more normal.) Imagine if she'd seen me on Wednesday! =o
Flu vaccinations...
I can't get the 'flu shot, because it lays me low, or makes me exhausted/sick for at least 1.5 weeks afterwards. That's a luxury I cannot afford in Year 12. Seeing as I'm practically housebound, I don't need the vaccination, plus with a low immune system, it's recommended in a lot of countries that you shouldn't get the swine flu vaccination unless you work/study, etc. in high-risk areas, like schools, or hospitals. So I may have to get it next year, but I'll ensure I get it on the hols. No reason to fall behind in SACs & work if it can be avoided. I really hope there is a "next year", though. I want to go back to school & graduate so badly that I can't quite explain it in words! I just have to improve & must graduate. Then I can stress about uni. (lol!)
The week ahead...
If all goes well, I'm going to the gym (to see a personal trainer, finally) on Wednesday afternoon, having my hair cut Thursday afternoon, & possibly going to Ikea to get a new wardrobe. Possibly. (I also don't know if we have to get my shelf taken down so the wardrobe will fit. My current wardrobe doesn't fit all my stuff, & isn't great.) Then on Saturday, I have maths tutoring again in the afternoon. (I had it Saturday, and today this week, to make up for last week's missed lesson.) I love Ikea's cafeteria. Particularly the free refills for soft drinks. =D It'd be a nice outing.
Monday, February 8, 2010
Time to stress!
Yep, it's officially time to stress. Distance ed is starting really soon. So is maths tutoring. And my mum and I are in the middle of filling out the distance education enrolment forms. Just got to figure out how to phrase my reasons for choosing distance ed. Obviously disability, but I need to convey the severity.
I've got my textbooks, folders, exercise books and necessary stationery. It's all labelled, too! (I must remember to buy spare batteries for my calculator...) Also arranged tutoring for the soonest date I could - 21/02; this Sunday is Chinese New Year, so the following one is best for my tutor. It's at 11am, but thankfully at home, not at the uni. I'd die if I had to get up at 10am, eat, dress, pack my books/meds/money AND get to the uni! So I guess I can get up at around 10.30, have something that won't induce severe nausea, but will keep me going for 2.5hrs, and get dressed. I hope it won't be hot, though. The uni has better a/c than my house.
I really miss school. Getting up a few days a week, putting on my uniform, and seeing kids. I know I'm too sick for it, but I still feel envious and upset when I see kids (even my brother) coming home from school, or leaving in the mornings.... I'm back to doing a bit of weight-bearing exercise, because I'll need stronger arms to carry my bag to school next year, and my books/laptop to classes. I'm thinking about seeing a personal trainer again, to get out of the house, have some structure, and hopefully improve my level of tolerance for activity and exercise related pain.
It's summery weather again, there were two days where it was less than 25*c, but now it's going to be 31*c+ for most of the week. Today is 35*c, I think. My sleep is totally screwed. I slept from 2am-5am, then got 20mins rest/sleep between 6am and 7.30am. I stayed up until nearly 10am, and had breakfast, then went back to bed, and managed to sleep again. 11am-1pm. If someone could just treat my sleep, they'd be treating my pain, nausea, and so many of my other symptoms. Right now I'm not coping with this amount of sleep. I can barely listen to music anymore, I can't go on Facebook chat, and watching DVDs is about all I can do. Interrupted sleep is killing me. I'd rather 4hrs' straight sleep a night than 8hrs' waking every 15mins.
I hope I meet new friends next year, and I really hope I can get out of the house enough this year. I've never liked shopping, but even buying CDs, or looking at sales is infinitely better than being house-bound. I guess it's back to watching Skins now. I'm in the middle of series 3. =)
I've got my textbooks, folders, exercise books and necessary stationery. It's all labelled, too! (I must remember to buy spare batteries for my calculator...) Also arranged tutoring for the soonest date I could - 21/02; this Sunday is Chinese New Year, so the following one is best for my tutor. It's at 11am, but thankfully at home, not at the uni. I'd die if I had to get up at 10am, eat, dress, pack my books/meds/money AND get to the uni! So I guess I can get up at around 10.30, have something that won't induce severe nausea, but will keep me going for 2.5hrs, and get dressed. I hope it won't be hot, though. The uni has better a/c than my house.
I really miss school. Getting up a few days a week, putting on my uniform, and seeing kids. I know I'm too sick for it, but I still feel envious and upset when I see kids (even my brother) coming home from school, or leaving in the mornings.... I'm back to doing a bit of weight-bearing exercise, because I'll need stronger arms to carry my bag to school next year, and my books/laptop to classes. I'm thinking about seeing a personal trainer again, to get out of the house, have some structure, and hopefully improve my level of tolerance for activity and exercise related pain.
It's summery weather again, there were two days where it was less than 25*c, but now it's going to be 31*c+ for most of the week. Today is 35*c, I think. My sleep is totally screwed. I slept from 2am-5am, then got 20mins rest/sleep between 6am and 7.30am. I stayed up until nearly 10am, and had breakfast, then went back to bed, and managed to sleep again. 11am-1pm. If someone could just treat my sleep, they'd be treating my pain, nausea, and so many of my other symptoms. Right now I'm not coping with this amount of sleep. I can barely listen to music anymore, I can't go on Facebook chat, and watching DVDs is about all I can do. Interrupted sleep is killing me. I'd rather 4hrs' straight sleep a night than 8hrs' waking every 15mins.
I hope I meet new friends next year, and I really hope I can get out of the house enough this year. I've never liked shopping, but even buying CDs, or looking at sales is infinitely better than being house-bound. I guess it's back to watching Skins now. I'm in the middle of series 3. =)
Saturday, February 6, 2010
Skins, The OC, and an ill teenager's escapism
I really love the tv show Skins. It airs on SBS and FOX8 in Australia, on free-to-air and Foxtel respectively. (It's always delayed by months, though, last year it aired here 6 months after it's release in the UK. Fail.) I love it because it's the closest I will ever get to being a teenager, it's funny, has great music, and is more realistic than The OC (which is what I used to watch when I realised I'd never be a teenager.) On Tuesday I bought series 1, 2, and 3 on DVD, and, suprisingly they were only $30 each! I've seen every episode in series 1 and 2 at least twice, but I still love it. I'm still waiting for episode 2, series 4 of Skins to load. Streaming is taking FOREVER, and Megavideo works best, but I can't find any links for episode 2 there yet. I've watched about 12mins of it so far, and I really like it.
I wish I was well enough to have close friends, or more friends who'd stand by me with my illness. But I don't. That's ME/CFS for you; it drives almost everyone away, even your family and closest friends.
When I was 13, and watching The OC, I'd feel happy, and hope that one day I could go to parties (when I'd be better, at 15, like my doctor said) or go shopping with my friends, or even try drinking. Or have a boyfriend. By the time I hit 17, and had bought the first season on DVD, I didn't watch it for those reasons. I had to escape. From home, from being stuck in my room, from getting B+'s and A's when I could've been doing so much better, if only I could study. Then it'd depress me sometimes, because everyone was SO rich and SO happy, and I just wanted a tv show that was a bit more realistic. So I'd watch it to escape, but fume inside at times, too.
It's frustrating for me that my school has taken away admin privileges when they reimaged my laptop - so I can't download any programs or update anything (iTunes, Flash player, etc.) and that our PC is so slow it's going to die soon. Opening Microsoft Word can take 10mins and risk freezing or crashing the PC, and opening iTunes now takes up to 35mins, then waiting 10mins to open the iTunes Store, or a tab like 'Music' or 'Movies'. And, of course, iTunes periodically freezing. I can't use iTunes on my laptop because it's such an old edition, plus I can't download songs or update the edition. So I'm going to take my laptop into school soon, and ask for admin privileges to be reinstated, or for them to enable program updates with my username. Then I won't have to go near that damn PC unless I have to print.
I got more Ondansetron from my specialist, I'm limiting the useage to a few times each month, which is why I only got a script for another 10 wafers. I also got Panadeine Forte for pain (doesn't do much, but I can sit for a little longer when I take it) and will ask for something stronger next time. My specialist thinks all the stress at home and about school can't be good for me, but that there is very little that can be done about it. She's also writing the letter to the distance education region about my application on medical grounds, and thinks that a year off, provided I don't stress about my marks, will benefit me. But I no longer trust doctors!
I went to Officeworks on Thursday, and bought two blue exercise books, one small, one large. One for notes and the other for working out, etc, respectively. I'm reusing 3-ring binders/folders that were a gift from Christmas 2005 (they're from Borders, and are transparent, with colourful translucent butterflies covering them) for this year, for distance education homework, work/notes, SACs, Unit 3 work and Unit 4 work. I also bought a blue display book for notes and working out from my tutoring sessions, plus cheatsheets from each year of Methods, and new ones for this year. And I got butterfly labels for my folders and display books. They don't match, but go together quite nicely. I'll feel completely organised once I've covered the labels on the folders, so they don't get torn, and have bought and labelled my textbooks. Then I'll organise tutoring for an evening during the week, get my mum to fill in the enrolment forms, and I'll be set. I just hope I can get through this year.
That's about it; I'm kind of sleepy, and my brain is starting to shut down. (More than usual) Thanks for reading, and if you've got any ideas, feedback, or tips on how to make my blog look less boring, I'd love to hear them. I'm rather new to this blogging thing.
I wish I was well enough to have close friends, or more friends who'd stand by me with my illness. But I don't. That's ME/CFS for you; it drives almost everyone away, even your family and closest friends.
When I was 13, and watching The OC, I'd feel happy, and hope that one day I could go to parties (when I'd be better, at 15, like my doctor said) or go shopping with my friends, or even try drinking. Or have a boyfriend. By the time I hit 17, and had bought the first season on DVD, I didn't watch it for those reasons. I had to escape. From home, from being stuck in my room, from getting B+'s and A's when I could've been doing so much better, if only I could study. Then it'd depress me sometimes, because everyone was SO rich and SO happy, and I just wanted a tv show that was a bit more realistic. So I'd watch it to escape, but fume inside at times, too.
It's frustrating for me that my school has taken away admin privileges when they reimaged my laptop - so I can't download any programs or update anything (iTunes, Flash player, etc.) and that our PC is so slow it's going to die soon. Opening Microsoft Word can take 10mins and risk freezing or crashing the PC, and opening iTunes now takes up to 35mins, then waiting 10mins to open the iTunes Store, or a tab like 'Music' or 'Movies'. And, of course, iTunes periodically freezing. I can't use iTunes on my laptop because it's such an old edition, plus I can't download songs or update the edition. So I'm going to take my laptop into school soon, and ask for admin privileges to be reinstated, or for them to enable program updates with my username. Then I won't have to go near that damn PC unless I have to print.
I got more Ondansetron from my specialist, I'm limiting the useage to a few times each month, which is why I only got a script for another 10 wafers. I also got Panadeine Forte for pain (doesn't do much, but I can sit for a little longer when I take it) and will ask for something stronger next time. My specialist thinks all the stress at home and about school can't be good for me, but that there is very little that can be done about it. She's also writing the letter to the distance education region about my application on medical grounds, and thinks that a year off, provided I don't stress about my marks, will benefit me. But I no longer trust doctors!
I went to Officeworks on Thursday, and bought two blue exercise books, one small, one large. One for notes and the other for working out, etc, respectively. I'm reusing 3-ring binders/folders that were a gift from Christmas 2005 (they're from Borders, and are transparent, with colourful translucent butterflies covering them) for this year, for distance education homework, work/notes, SACs, Unit 3 work and Unit 4 work. I also bought a blue display book for notes and working out from my tutoring sessions, plus cheatsheets from each year of Methods, and new ones for this year. And I got butterfly labels for my folders and display books. They don't match, but go together quite nicely. I'll feel completely organised once I've covered the labels on the folders, so they don't get torn, and have bought and labelled my textbooks. Then I'll organise tutoring for an evening during the week, get my mum to fill in the enrolment forms, and I'll be set. I just hope I can get through this year.
That's about it; I'm kind of sleepy, and my brain is starting to shut down. (More than usual) Thanks for reading, and if you've got any ideas, feedback, or tips on how to make my blog look less boring, I'd love to hear them. I'm rather new to this blogging thing.
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