Shopping and results!

Shopping:
I went shopping on Monday, but have been recovering until now, (Friday) otherwise I would have posted earlier! I found a bag, some shoes, and got my blazer altered at the tailor's. The bag is black, and the main section has a zip compartment which is ideal for my medications, and in the main section I'll carry my usual things: wallet, water bottle, pension card/library card, (they're the closest thing to an ID I own!) keys, etc. On the front there's another zip compartment, but much larger, and I'll use that for my iPod, iPhone, and anything else I need frequent or quick access to. Perhaps Ondansetron should be kept there, too! On the back of the bag there's a small zip section which is ideal for papaw ointment, lip gloss and a small mirror. Here's a picture, what do you think of the bag?

The shoes I got were from the Converse outlet, and one pair is black and sparkly, fastened at the side by velcro/press studs and sort of look like slouch boots. They don't have laces, so they're a bit more formal than normal Chucks. Do you like my shoes? I won't be wearing the tops turned down at my reunion, but they're still cool! 

The second pair I got are just normal low-tops, except they're pink and glittery, with identical laces. I don't normally like pink, but these were so bright and shiny (I sound like Gollum!) that I couldn't resist. Oh, and the laces are sort of elastic-y. Are they too pink and shiny, or do you like them? Let me know, leave a comment!

I also bought Franz Ferdinand CDs: 'Franz Ferdinand', 'You Could Have It So Much Better', 'Tonight: Franz Ferdinand' and 'Blood: Franz Ferdinand'. The only one I didn't own a digital copy of (from iTunes) was 'Blood: Franz Ferdinand'. I've since listened to it, and I like it, but not as much as the other albums. I don't always like remixes. But since I've really got into Franz Ferdinand, I had to own a copy of all their albums, and actual CDs at that. Same with Oasis and The Killers. I can't wait for Franz Ferdinand's next album, and I really hope they tour here, at a disabled-friendly venue. (ie. Not a festival, an arena with seating, and music that a friend likes so I can access the disabled seating.) With The Killers on hiatus, I needed a band to fill the musical void in my heart! Here are the CDs I bought; sorry the picture is sideways. I take all pics with my iPhone now. Do you like Franz Ferdinand, too? What sort of music are you into? What music would you recommend for me?

I just needed the sleeves on my blazer shortened as they were too long, but otherwise it fits me really well. It will be ready to pick up on Tuesday. Hopefully it turns out fine; I've never really owned a "good" jacket or had to have anything altered besides jeans. I'll post pics of my outfit as soon as I have it all together. I have a really nice necklace to wear, as well. I welcome opinions!

Maths results!

My mum rang my teacher the other day because I was having a mini-meltdown over my results, which I STILL hadn't received. I got an A on my calculus assignment (that really long one that took a fortnight) and a B on my test/assignment which was on calculus and trigonometry, plus a few other things. When I got my results in the mail, I got a fright, because of the way things are classified, my marks fall as a 'High' (B+ or B) and a 'Medium' (C+ or C.) My teacher worked out the percentages, though, and I got a low A, which falls into the 'High' category with the sorting, and for the second assignment I got a high B, which falls into the 'Medium' category with the sorting. So far this year on my assignments I've received: A+, A, B. My next assignment is in the last week of June, and I think it's another long one, but I only get a week to complete it. I really hope I do alright.

I have to maintain a high average for my classwork, because I usually do badly on my exams. I panic, and then have a mind blank. This only started after I missed a year of school and was house-bound that year. My doctors think I developed a lot of new fears that year. When I got back to school I was terrified of speaking in class, or even talking to people. I'd also developed mild agoraphobia. I hated leaving the house, and would have a panic attack every morning before school. I still panic before any kind of public speaking, whether it's debating, a speech in front of the school, or just my English class. And I'm really panicky during it. I thought debating would help me face my new fear of public speaking, but it just meant I got to be terrified on a regular basis. So I'm still as scared as ever when it comes to public speaking, but if I feel comfortable in a class, I'll contribute. I'm always told I need to contribute more to class. (Not in German; there was nowhere to hide in a class of four people, including me!)

Another stressor/fear:
I'm stressed that I'll be the same after this year at home, studying by distance: scared of school, scared to speak up, scared of leaving my room. I do go out, but that's different to giving a speech to a class. I wish I could be assessed differently for oral tasks, because they actually mark you on how well you present. So I'm at a disadvantage before I even start the assignment! I just hope that there aren't too many oral presentations, and if there are, that it's group work. Then I don't have to do all the talking. The worst thing is when I get so shaky and start blacking out that I'm not sure if I'll be able to speak... But I always end up talking. Luckily! I really don't think it's fair to assess people on how they present an oral task. A fear of public speaking is very disabling, and if you already have a disability, it's even worse.

Sleep...
I slept well Monday night this week, but I was woken the next night, so since then I've had very broken sleep. Take last night as an example: I went to bed at about 10.50pm, but woke at 1am, 5am, 6am, 7am, 8am, 9am, 10.30am and 11am. I got up at 11.30am, and haven't been back to bed since. It's a pity, because I really need my sleep to recover from all the activity on Monday. I walked so much that day, it was a huge shopping centre! I'm hoping my sleep will right itself again soon, because I will really need rest before my reunion. I hope I can have a good time, because after that, it will be the weekend, then my assignment week. Yay.

I love reading your comments, but I've been missing them lately! Where is everyone?!

Maths and other things

Another outing!
I got to go to IKEA on Saturday, as I really needed a new wardrobe and bedside table. I didn't go until 4pm, but I still needed Ondansetron; I've been getting shocking nausea, headaches, dizziness and disorientation/confusion from the LDN. (Which I have had to stop taking; I have been off it for two or three days.) I went to the cafe first, and I really love IKEA's cafe. Particularly the free refills on soft drinks! But for the past 4 days I've eaten one bowl of low fat pumpkin soup (nearly threw it up, that was a mistake) and a few spoons of coconut rice if I get starving. I wonder if I've lost weight; I know I lost a kilo last week. Anyway, I was all *sadface* because I couldn't even finish the kids' bowl of chips I'd got. But I managed a glass of Pepsi. =D It's a good thing I don't lose weight as easily as I used to, otherwise I'd be really thin by now!

Mum had already found out what aisle the wardrobe and bedside table were in, so we went to get them, then organised delivery for the next day, preferably after midday. The furniture arrived at 11am, so I got up at 10.15am, (which is when Mum warned me it would be dropped off soon) watched a bit of tv, and was going to go back to bed, but had to help with the grocery shopping, and get some take-away coconut rice. (If you're ever feeling nauseous, this seems to be quite tolerable in small amounts.) Then I went back to bed, to catch up on sleep. I'd only got 2hrs' broken sleep during the night. O.o

We're going to organise for the furniture to be assembled (hopefully) sometime this week, and then I'll post pics on Tumblr or Twitter of the new furniture. One of the wardrobe doors has a mirror on it, which is brilliant, 'cause I've only ever had one of those little mirrors designed to sit on a shelf so you can see your face. Not useful for looking at a whole outfit!

Maths...
I started Unit 4 on Sunday, having finished my calculus assignment last week, and my 70-minute SAC in the same week, as well. I'm really not sure about how I'll go, and I know for sure I got one of the short-answer questions really wrong. I guessed. Sometimes guessing pays off, sometimes it doesn't; but you had to attempt every question to show a satisfactory understanding of the topics in that SAC. Ew. Week 1 is antidifferentiation, which is pretty hard. There are also way too many rules, plus it's complicated to set out and remember what I am supposed to be writing!

I had maths tutoring on Monday, and we covered all of Week 1, then after about 2.5hrs of tutoring, I studied for another 3.5hrs, and I managed to complete the week's homework and a 20-minute practice exam. I plan to revise antidifferentiation as soon as I can sleep enough and the house is quiet. I hope I get a decent score for maths this year, I know that it wasn't this difficult in Year 11!!

I might ask some of my friends who graduated last year to study with me/share their notes before my exams. That is one slight advantage to being left behind; you can get help from others who have very recently suffered through the same subjects as you!

I hope my tutor isn't disappointed in me when I get my marks back. She's really nice, I just feel like I could do so much better if I could sleep each night, or 3 nights per week. I feel like I'm letting everyone down; I used to be able to survive on 3hrs' sleep every night when I was 13, now I can't survive on 4 or 5hrs' broken sleep. I think if I were to get 5hrs' sleep without waking, between 11pm and 4am, I would be okay. But some nights I am awake until 4am, or even 8am. And I don't sleep deeply after a whole night awake anymore.

Sleep.
I slept much better on Saturday night, only waking two or three times, and I got to sleep at around 1am, woke at 2am and 6.30am, and got up at 10.15am. Obviously I didn't get 8hrs' sleep, as I was awake from 6.30 onwards, dozing occasionally.
Sunday night I slept about the same, except I woke at 2.30am, and couldn't sleep between 7.30am and 11am as my younger brother had a friend over for a sleepover the night before, and they were quite loud. But, thankfully, they were silent when they got up at 4am or something to watch the World Cup. I had maths tutoring at midday, so I had to get up at 11am, and I took Ondansetron at 10.40am, so I would be able to get ready and eat a little without throwing up.
I slept okay last night, as well; I got to sleep at around 1.30am, woke once or twice (I don't remember when, so I musn't have been awake long) and have been awake since 6.50am. (It's nearly 10.20am.)

I've dimmed my bedside alarm clock so that it doesn't display the time; all my doctors have made me "clock watch" so I can say when I wake/sleep, etc. but that obviously increases anxiety and makes you less likely to sleep. I'm getting used to it, slowly, but I hope it helps my sleep in the long run. I honestly think, looking back at my sleep pattern, that any amount of anxiety or stress directly affects my sleep. Which is why my sleep has been getting steadily worse, along with my health, since I started Year 11, and I get worse each time a doctor lies to me, lets me down, or makes false promises and gives false hope. Ie. "I can cure you, you feel like this all because of your Idiopathic Hypersomnolence." I need to learn to let go of these things, but I've never been good at moving on, or no longer dwelling on the past, so it will be really hard. But it's affecting my health, so I must try.

Blogging...
I'm wondering if I should keep going with my blog; I do know that some people read it, I'm just not sure if it's worth it. I feel I should post at least each week, but is there a point if no one really cares? Would I be better off just using my energy to write in my diary most days. If anyone has any opinions, tips or comments, I'm always happy to hear them!

An update.

My diary:
So I've been writing in my diary daily, and I am actually finding it helpful. (... And painful; I've never been able to write more than half a page without my whole left hand cramping and aching!) I have named my diary, too. I find myself a little more content, or at least, less ill at ease after I have written several pages. I feel I have so much to confide in Jadzia, (this is what I have named my diary) so much that my hand cannot keep pace with my mind, which, as always, is running at a million miles a second! I would dearly love for the pain to go away, so I can write and write until I have lifted some of this weight that is dragging me ever deeper with each passing day.

I find it reassuring to know that I can always turn to my diary, even when I am housebound, with few friends who keep in touch. I wish I had more energy, or some at least, so I wouldn't always be lacking in energy, and using the next day's ad infinitum. With a little more energy, I would be able to dress, shower, wash my hair and even study, as well as write in my diary without lying in bed in between each minor task. I can only hope that I am able to sleep well soon, so that I may return to school in November and give these last two subjects my best try. I miss school; the routine, the social contact, the familarity and even some of the teachers!

If I am granted one wish this year, let it be that my sleep returns to a 11.30pm-6.45am pattern so that I can do my best each day. I fear that I bore readers (if there are any) with my repetitive posts. Hence, my diary. Jadzia shall never stop "listening" and I will always have an outlet for my emotions, one which is cheaper than a psychologist and has no office hours!

Despair, or Year 12, as it is otherwise known!
I am currently despairing, as I feel I shall receive a terrible mark for my last calculus assignment, which I must send off with a medical certificate this week. (My teacher did say it would be the hardest assignment or test I would encounter this year, and it is no wonder I had so much trouble with it, but I was so hoping to maintain my A average.) I should work on my next SAC today, which is only 70mins long, including reading time. I do hope I receive a decent mark for this SAC, as I cannot afford a low average for my schoolwork. I tend to perform badly on exams, as people with M.E. generally do; once time constraints are applied, marks go down, and forgetfulness increases. It has been proven, but, naturally, the governing body for Year 11 & 12 assessments does not recognise recent research. This illness frustrates me more than words can describe! I believe this SAC covers weeks 9-12, or the tangent function, co-ordinate geometry, and an awful lot of differentiation. I studied for a long time with my tutor, and even after she had left, so I hope the knowledge stays with me. Wish me luck, it's due in this Friday!

"The Diary Of Anne Frank"
I am re-reading Anne Frank's Diary, not because I've started to keep a diary of my own, but because I've always loved the book, and I used to want to be like Anne Frank when I was younger. (I was 7 or 8 when I first read it.) I wanted to have that many friends, be popular and fun, do well in school and have (what I considered to be) beautiful penmanship. Above all I wanted the ability she had to look at herself without pity, and analyse herself, her interactions with others and every aspect of herself. I wanted to have that kind of faith in God, and a sense of optimism.

There is a passage that spoke to me, and I honestly wonder if it could help someone who feels the way I do... "The best remedy for those who are afraid, lonely or unhappy is to go outside, somewhere where they can be quiet, alone with the heavens, nature and God. Because only then does one feel that all is as it should be and that God wishes to see people happy, amidst the simply beauty of nature. As long as this exists, and it certainly always will, I know that then there will always be comfort for every sorrow, whatever the circumstances may be. And I firmly believe that nature brings solace in all troubles." (Wednesday, 23rd February, 1944, "The Diary Of Anne Frank")

I am without any kind of faith; I seem to be unable to sustain or even start a belief in a God of any sort, and this is the only real issue I have with the passage. A few entries before Anne wrote this, her mother advised one of their helpers, who was feeling terribly miserable, to think of all the others who are miserable in the world, and said that would help to cheer her up. That is quite similar to people telling me: "There's always someone worse off than you, be grateful for what you have." I think I would rather go out to the countryside for a few days, or a week, and spend some time relaxing, writing and unwinding. It is very difficult to be at one with nature in a city! Anne seems wise beyond her years, and I would be grateful to have some of her spirit; her unwavering faith in God, her sagely advice, and her patience.
In reading her diary I have seen how much she has changed over the course of a year, from the first entries, about her life with friends, boy friends, outings and more, to her increasingly introspective life in hiding, learning to keep the peace, bite her tongue, and try to understand and get along with all occupants of 'The Secret Annexe.'

I hope that by keeping a diary, and by talking through my problems that I will be able to become a better person. Not like Anne Frank, by any means, but simply more understanding and tolerant of my family.

Thank you for reading, and if you'd like, please leave a comment! (I always love to read them, and I always try to respond.)

Tumblr

Tumblr!
Yes, I've taken another step into the 21st century; I now have a Tumblr account... I've just posted an introductory post, reblogged some funny stuff, and posted some of my fave pics. I'm not sure exactly what else to do with it. It's a mini-blogging service, right? Does that mean that when I'm too tired to write a full post here, I can write a mini one there? ... I might just do that! Um, anyway, this is me on Tumblr: http://thecabbagestalk.tumblr.com/ I figured I should try it out, as a lot of people on Facebook and on Twitter have it. I like it so far, especially the background I chose for my Tumblr. =D

Side effects...
Because my specialist put me on a dose that was so high it's classified as Naltrexone, not Low Dose Naltrexone, I got one of the worst side effects possible: lethargy/fatigue/exhaustion. So that's why I've been feeling more zombie-like than usual this past week! I also had a lot of nausea and dizziness/lightheadedness. Now that I'm down to about 6mg, I should have milder nausea and less dizziness/lightheadedness. Although the nausea was shocking yesterday when I got up for tutoring; I couldn't sit up or even drink. Thankfully I had some Ondansetron!

Maths:
The next two weeks are assigned to a two week project SAC, designed to be completed in about 7.5hrs max. After that, I have a 60 minute SAC, then I start Unit 4, which begins with antidifferentiation. I had a bit of trouble with that in Year 11, although it was quite rushed when we studied it. Hopefully I'll do better this time around! I have maths tutoring today and we're going to revise the topics my teacher said would be covered in the SAC. That way I'll be fully prepared. (I hope; Mum had a look [she's my supervisor] and said it looked really long.) The next SAC (the 60 minute one) is on calculus/differentiation and circular functions, so I definitely need to revise circular functions before that week begins. I got a Very High on my last SAC, which is an A/A+, I really hope I can maintain that for my school work and SACs.
Exams are my main worry; I get panic attacks about them, and get exam "panic" - my mind can go blank from fear. It happened twice in two Year 11 maths tests. Plus it's quite scary being in a room with just the examiner watching you. And this time it won't be a teacher from my school. =( There's a morning exam, so I don't know how well I'll do on that one, as I can't function until midday, at least. The other one starts just before midday, I think, so that should be okay. I've applied to sit them at home, so that way I can lie down during my rest breaks. I hope I get a good mark; my teacher thinks I will definitely pass, which is brilliant! She actually thought I'd been a student who excelled at maths my whole life! =o

Sleep...
I slept a bit better the other night, and I seem to be able to get to sleep by 1.30am at the moment, but I wake quite regularly. Today I went to bed at midnight, fell asleep at around 1am, woke at about 2am, then 4.50am, and I'm still awake. I tried to get back to sleep, but couldn't, so I figured I'd write a blog post. I can go to school on 3 hours sleep, it's just trying to get 3 hours of unbroken sleep. I'm really worried about my sleeping pattern because I start orientation in Nov/Dec, and I need to be able to get up at 6.30am, or 6.50am at the latest. Which means I need some solid sleep, and to be able to sleep from about midnight. I know someone my age needs 9-10 hours of sleep per night, and I need more than that because of my Idiopathic Hypersomnolence, but, realistically, I haven't slept like that since I was about 10. If one thing gets sorted out this year, or changes for the better, I want it to be my sleep. (Or "sleep pattern")

I guess that's it.
Thanks for all your comments, I really appreciate every one of them, and respond to them as soon as I can; lately I'm not able to use my laptop much at all. I'll try to sleep now, seeing as it's after 6am. If you've got any tips on how to use Tumblr, how to cope with lack of sleep/side effects/illness or exam anxiety, I'd love to hear them! =) Thanks for reading!

Good news!

First of all, the good (medical) news:
My specialist agreed to prescribe LDN for me. (That's Low Dose Naltrexone, if you didn't know. ^.^) She said to take a quarter of a tablet, but didn't specify when or how to take it, or whether I can or should increase the doseage if needed. Each tablet is 50mg, so a quarter (it's hard to make it exact, even with a pill cutter) is about 12.5mg. So that's what I'm taking each night.
I'm going to see my GP, ask what the highest dose is, how I should go off it (if I need to) and how long it needs before it starts working. My specialist had never prescribed LDN before, probably because her patients trust her and don't do their own research!!
I've been on it since the 12/05/10, and it does seem to make headaches less severe and Panadol work better for them, but that could just be a placebo effect, or my mind making it think it's doing that. Because I studied for 5.5hrs today, I had a lot of back pain. It wasn't as bad as last week; I was incapacitated then, and totally bedbound, unable to move for about 4hrs. This week, it was still awful pain, but I could manage to do a few things before lying down with a heatpack for 1.5hrs and then having a hot shower.
Heat seems to really help my pain. It didn't help my rheumatism. I had a bad attack of it the other night, so I was lying down, mum was bringing heatpacks and I had my electric blanket on full. But mum's arthritis was playing up, too (our pain always seems to coincide) so we both want a definitive test to rule out all types of arthritis. But no side effects so far from LDN, because I was getting headaches before it, I think that it's just normal ME headaches.
I can only take Panadol or Nurofen while on LDN, anything with codeine will cause a reaction similar to an opiod overdose. My specialist doesn't know what it'd look like, so mum took all meds with codeine out of my room. My memory is so bad; I thought Mersyndol didn't have codeine!!

The good (academic) news:
I got my SAC in the mail last week, and I got a "Very High", which means my mark is in the 80% - 100% range. I think I got an A+, but after I saw that I got higher than a B, I was so happy I couldn't be bothered calculating my result as a percentage. So that's brilliant, because it counts for my work from Weeks 4-7! I'm really happy, but worried about my next SAC. It sounds rather complex.

Fail!!! (Or "brain fog" in the ME world)
I thought my SAC was this week, and that's why the Distance Education people had posted the SAC to my mum (my supervisor) last week. I got my weeks confused. This week is Week 13, which is more calculus/differentiation, but Weeks 14 and 15 are the SAC. It's a project on calculus/differentiation, and it's supposed to take no more than 7hrs in total. Or something like that. The week after that (Week 16) I have another SAC, which is a test-format SAC on, I guess, calculus/differentiation. Then I think it's holidays. So I'll be really busy for the next few weeks!! Although, I've already completed this week's required homework, and my teacher is visiting on Tuesday, so I can show her what I'm having trouble with, and we can work out what amendments to the requirements would be best for me.

Birthday presents:
I was finally able to go out a week or so ago and buy a new pair of tracksuit pants (one I bought in January stretched strangely, so now they're too long to wear. The fabric was waaaay too stretchy!! (On the old pair!) I still need to get this new pair taken up at the tailor's. I also bought new winter pyjamas, and a hoodie that matches them. Plus slippers. I figured I may as well get really comfortable pyjamas, seeing as I spend so much time in them! I got one blue pair (paisely blue/aqua with a royal blue top) and a purple pair (white/purple striped pants with a purple top.)  I still want to buy a dressing gown, though. One of those warm ones. I haven't found one yet, but I'll keep looking! I used my gift card and some of the money I got for my birthday. There was a huge special on at that particular store, which was great! I may even get a second hoodie from there; quite cheap, very comfortable and warm.

Sleep:
My sleep is all over the place. Most nights I'm up until 6am, or until I get a headache, nausea and dizziness, (from lack of sleep) so that I have to lie down with my eyes closed, and not move. Last night, though, I went to bed at 11.25pm, woke at 3.30am, and a few times in between. I've been up since. It's about 5.10am now, so I'm going to try and sleep. I can never catch up on sleep, because in the mornings (7.30am - 9am) there's "getting ready for school noise" and in the afternoons/evenings there's "arriving home/playing PS2, etc/getting dinner ready noise" So I really need to get my sleep sorted. I have no idea how to, though. Any ideas? (Apart from anything sleep hygeine related; that's what got my sleep into this freaky pattern in the first place!)

Thanks so much for reading. Any comments, feedback, or tips would be greatly appreciated! Take care.

Distance Education

Good news!!!I got my work for Week 9 completed last Saturday and my work for Week 10 was finished on Thursday, so Mum was able to mail them both on Friday. I felt so much better once I'd finished my work; like I wasn't weighed under anymore. There's just so much work that it overwhelms me & makes me sicker. But I got my work back (Weeks 1-4) and I got everything right, except for one or two questions. My teacher thinks I have a "really good understanding" of all the concepts, even graphs!! So if I do that well on my SAC, I should end up with a B or an A as my mark so far. Which is brilliant, I've never been a good maths student! She's still marking the SACs for my 'class', but I should receive it soon. I use registered mail for all my distance education work & paperwork/forms; it's reliable, can't get lost, and you get a delivery receipt. I've got a SAC in 3-4 weeks, I think it's on differentiation/calculus, so I should be okay with that one. I'm just not great at using my calculator. It's a TI-89 Titanium. (If anyone has/had one and can give me some tips on how to use it, I'll be eternally grateful!!)

Sleep...
I haven't been sleeping much at all. Two hours' broken sleep some nights, 5 hours' broken sleep other nights. The longest I can stay asleep for is about an hour. So I wake hourly on a good night, but every 10mins on a bad night. Today I went to bed at about 1.20am, fell asleep around 2.15am; woke at 6.15am and 8.40am. (Haven't slept since.) That was a pretty good sleep. I just wish I could've slept 'til midday so I could have, like, 8-9 hours of sleep before maths tutoring. (Which is at 2pm.) If I could sleep for 7 hours a night, without waking, my pain would be greatly reduced, I'd be able to function and I wouldn't feel like an early onset dementia patient!! (Seriously; I forget sentences, the names of objects, where I'm going, what a key does AND what it's called... I can get to the front door, have my key in my hand and go: "I don't know what it's called or what it does. How do I get in?")

Another "specialist"
Mum did some more research & found a doctor who is about 1/2 an hour from us, and he actually TREATS pain!! With real painkillers!! Goodbye, Panadeine Forte, hello sleep and pain relief!! He also uses LDN, which is highly recommended by some overseas Twitter friends. One problem: no appointments until SEPTEMBER. I'm on the cancellation list, but as soon as I can manage a phone call, I'll ring up and explain my situation; Year 12, immense pain, sleep deprivation, exams in October/November, my need to graduate next year. Hopefully I can get an earlier appointment. Fingers crossed!! But don't worry, I'm not getting my hopes up; aside from pain relief. I'm not going to be devastated and have a relapse caused by another doctor making promises no one can keep.

Organisation...
I'm usually an organised person when it comes to schoolwork, study and homework, but it's got so much harder now I'm this ill. Plus I get panicked and stressed very easily, so once I mail something, I worry that it hasn't got there/I wrote the wrong name or address/it's been lost. So I'm an anxious person to say the least.  This year, I've let things slip. The work being 7 weeks late meant I slid downhill and was constantly overwhelmed. So the necessary forms aren't being filled in on time (also because they're sent 5 weeks late) but it's not helping. Thankfully, there's email, which I can check in bed on my iPhone!! So I have some Special Provisions info for my exams in my email inbox, plus the booklet is in the mail and should arrive in time for my Wednesday appointment with my usual "specialist." I also need to change one of the exams. It starts at 9.45am or something, and I can't function until after midday. So I need aforementioned "specialist" to put in a request for a change of time. She's great with paperwork and the "typical" ME/CFS cases, but isn't good for severe cases. Also she quote: "won't think outside the box in regard to treatments." End quote. Even L-Carnitine is to risky for her. So it's Melatonin (never worked) or anti-depressants. (Never worked, made me really sick.) So, yeah. I'd better be more organised for orientation this summer and school next year!! Hope my uniform still fits; I've been eating 3 meals a day some days!!!

Formspring.me:
I got some rather abusive/offensive questions on formspring.me when I said "ask me something" on Facebook & Twitter. I have an idea of who it was, and one of the questions I didn't answer because it would give away information like my location. (Stupid idea on the internet.) So I've disabled the "anonymous" option on questions. But feel free to ask me any questions that are civil and not offensive. =)
http://www.formspring.me/thecabbagestalk

I'll blog again soon:
Thanks for your comments, they mean the world to me. It's nice to not be called a liar", "whinger" or "faker" just because I try to raise awareness about ME/CFS and actually talk/blog/tweet about it!!
Hope you're all well, take care.

Alex. x