'Alice In Wonderland'

'Alice In Wonderland'
Yesterday I finally got out of the house, & went to see 'Alice In Wonderland' with a friend I met during my August admission to hospital last year. I thought it was a great film & the special effects were amazing. Johnny Depp was brilliant as the Mad Hatter... He does mad so well! I thought the actress who played Alice did a really good job, too, although her face was a little emotionless or blank at times. I didn't see it in 3D - it gives my mum & younger brother migraines, & made me sick the last time I saw anything in 3D. It was amazing to go out with someone around my age, instead of being stuck inside, or only going out to get clothes with my mum. Hopefully I can do it again sometime soon, I know that today I'm really achey & tired.

19 today...
Today was my 19th birthday. To be honest, I don't feel any older, but I think that might be because I haven't had a chance to be a teenager. My life pretty much stopped at 13. I can't even get my learner's permit; because of the years of sleep problems/deprivation, I could fall asleep at the wheel. Then there's the part where I can't focus on Methods some days, never mind a road with multiple distractions, plus learning to drive. I think if you wait until you're 21 to try for your learner's, the whole process of getting your license is fast-tracked considerably. So I might just do that, unless I magically improve. This has been my worst birthday... ever. The last time I was this sick was when I was 14, bed-bound or hospitalised. All my friends are at uni, & I'm stuck here, doing distance education. Things suck at home, too. (I'm not going to talk about it here.) ... I don't want to get any older. There's no point. I just get older & have nothing to show for it. I've really had it with ME/CFS. I never thought I'd get this bad, again.

Presents...
I'd asked for it not to be a birthday this year, so no presents, or cake, etc. But my mum went ahead & got me an iTunes voucher, 2 really pretty pill containers (they have flowers on them, each is a different shade of blue) & a voucher for my local shopping centre, so I can spend it at any store! Oh, & a Kinder Surprise egg. I used to love those when I was little!! My brother got me an iTunes voucher, too, & they both wrote really lovely things in the cards. My father couldn't have forgotten it was my birthday, but took a sheet of A4 paper, folded it in half, wrote 'Happy Birthday' on the front, & said he knew I'd get better, because I was so determined, & that he was sorry he couldn't help. I wasn't annoyed about the fact that he could've got me a card, or a present, (I asked for a happy, argument free day, which didn't happen) it was that he didn't realise that he can help. By reducing the stress. I say it every week. I guess you can't get through to some people. My half-brother from Germany also got me a present. It's a German picture-story book. I will find the energy to figure out what it says; translating the birthday card was tiring enough! (It's got a lot of words...)

Doctor's appointment
My specialist thinks things will improve dramatically as soon as I stop stressing & stop having panic attacks. (Should that read: "being put under so much stress"?) She also thinks that my back pain will be fixed by me sitting up straight. Which is BS, although I'm trying it, purely to prove her wrong, AGAIN. That's what she said when I was 14, so I improved my posture by 15, but when I get worse, my posture gets worse. I literally do not have the strength to hold myself upright. I've exhausted all my options for pain relief, & my scoliosis is still "mild"... But I just wish someone would listen when I say "The only thing that stopped this pain was an injection of morphine when I was 9 years old. The pain disappeared for months, only to reappear the following year, & worsen as my ME/CFS worsened. Uninterrupted sleep is the only thing that helps." She laughed when I explained I was worried about being sick & dependent on the disability pension in 20 years' time. It's not funny, but she thinks it's ridiculous I should worry about my future. If I've seen all the specialists, tried all the regimes, & nothing has helped, not to mention the fact that my specialist admits she doesn't know what to do anymore, why shouldn't I worry? I'm not getting better. I wanted a life, I wanted to go to uni & study Law. Now I might just be stuck in this house forever.

Finally...
I guess that's it. A pretty depressing post, but there isn't much to my life anymore. It all gets consumed by ME/CFS. I haven't even finished last week's Methods homework, & my tutor might assign me more via Facebook to make up for the fact we couldn't have a session this weekend. I might check if Skins has loaded yet. I think it's the series final.